Her Heart Beats Outside Her Chest. Her Story Is Astounding Everyone - Even Her Doctors
FaithTap Staff 10/28/2015
Virsaviya "Bathsheba" Borun was born with an extremely rare health condition that nearly killed her. Now she's surpassed everyone's expectations and is learning to cope with this strange ailment.
Proud Of Her Battle
Virsaviya suffers from Pantalogy of Cantrell (POC), which is a condition where the patient's heart and other organs are outside of their chest.
Most people would be embarrassed if they suffered from POC, but Virsaviya isn't ashamed of her condition. In fact, she proudly displays her heart.
Virsaviya was born with her heart out of her chest and in the future she can take solace in the fact that she's not alone. Doctors estimate that 5.5 in every 1 million live births result in POC.
To put that into perspective, it mean 0.0000055% of the population is born with the illness.
Virsaviya learned this strong sense of self-acceptance from her mother Dari who encouraged her to not be embarrassed of her body.
Dari shares Virsaviya's story through her Instagram account and the overwhelming outpour of support helps to keep her spirits up.
A Mother's Unconditional Love
Cold weather makes it much easier for Virsaviya's immune system to fail. So Dari packed up their belongs and moved them from their chilly home country of Russia to balmy Miami.
Dari explained to NBC News Miami that she hasn't lost her faith despite their unique challenges.
“I believe that Jesus will heal her, and I said I can’t heal her."
As a single mother, Dari has had to face issues that most mothers would never even know exist. So she turns to God for help and guidance.
Staying Strong No Matter What
Virsaviya's positive attitude and incredible curiosity brightens every hospital room and doctor's office. They're just smitten by this little girl.
A True Warrior
Through the many tests, x-rays and hospital visits, Virsaviya has kept her spirits high. She really is a warrior.
A Day In The Life
Click the "Play" button on the image below to take a peek into what playtime is like with Virsaviya.
Just Like Any Other Little Girl
Even though she has to take a few more breaks than other kids while playing, Virsaviya lives a normal life. She goes to school, has play dates and enjoys the outdoors just like other kids her age.
She Has The Right Idea
Despite the fact that her heart is only shielded by a thin layer of skin, Virsaviya remains dedicated to her faith. And from her life so far, it's fair to say God really does hold her heart in His hands.
A Lifetime Of Health Issues
In addition to the Pentalogy of Cantrell, Virsaviya is missing part of her chest bones, part of abdominal muscles, doesn't have a diaphragm, and suffers from pyelonephritis and pyelocystitis in addition to a reflex and bladder dysfunction.
Virsaviya won't give up
She will have to cope with these issues for the rest of her life. But luckily she has an outstanding attitude and will to survive.
An Angel And A Fighter
"My mom always told me that she loves my heart, and I really like it,” Virsaviya shared with NBC.
We like it too, Virsaviya. We really do!
She Remains Faithful To God
As if she couldn't get any more adorable, Virsaviya decided to be the Virgin Mary for Halloween this year. She really is a special little girl.
He Is There Every Step Of The Way
From the prayers she whispers at night to the dolls she plays with, God is always with her.
Finding Strength In The Darkest Moments
Despite her battles with Pentalogy of Cantrell, Virsaviya has remained strong mentally and physically. But she wouldn't have made it this far without the support of her mother, friends, family and generous people around the world.
"There is hope that Virsaviya can get her surgery if she continues take her medicines and her blood pressure improves, but both the surgery and her on-going treatments are well beyond the means of her family."
Her mother has started a YouCaring crowdfunding page to raise awareness about Virsaviya's unusual condition. Click here to learn more about how you can help Virsaviya beat the odds.